{"id":473,"date":"2018-02-28T14:16:41","date_gmt":"2018-02-28T19:16:41","guid":{"rendered":"https:\/\/angelman.ca\/?page_id=473"},"modified":"2018-02-28T14:23:41","modified_gmt":"2018-02-28T19:23:41","slug":"registre-global","status":"publish","type":"page","link":"https:\/\/angelman.ca\/fr\/registre-global\/","title":{"rendered":"Registre Global"},"content":{"rendered":"

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Registre Global<\/span><\/strong><\/h1>\n

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Partagez votre histoire dans le
\nRegistre Global du Syndrome d’Angelman<\/h3>\n

Le Registre Global du Syndrome d’Angelman est le premier Registre du patient en ligne pour le Syndrome d’Angelman; mettant le pouvoir dans les mains de ceux qui prennent soin de quelqu’un avec le Syndrome.
\nLes parents et les soignants m\u00e8neront la collecte de donn\u00e9es en partageant des d\u00e9tails qui formeront ce qui est, \u00e0 ce jour, la plus grande collecte d’information sur le syndrome d’Angelman.<\/p>\n

Le Registre fournira un outil pour comprendre les progr\u00e8s du d\u00e9veloppement, la gestion des m\u00e9dicaments et de l’\u00e9pilepsie. Plus important encore, il fournira une ressource inestimable pour faire avancer la recherche th\u00e9rapeutique.
\nLe timing est parfait; avec les soci\u00e9t\u00e9s pharmaceutiques qui pr\u00e9parent les essais cliniques pour traiter le syndrome, le registre fournit le m\u00e9canisme parfait pour analyser, recruter et mesurer l’efficacit\u00e9 des traitements.<\/p>\n

Pour en savoir plus et s’inscrire au registre: https:\/\/angelmanregistry.info\/<\/a><\/p>\n

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Registre Global

\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div> Partagez votre histoire dans le Registre Global du Syndrome d’Angelman Le Registre Global du Syndrome d’Angelman est le premier Registre du patient en ligne pour le Syndrome d’Angelman; mettant le pouvoir dans les mains de ceux qui prennent soin de quelqu’un avec le Syndrome. Les parents et les soignants m\u00e8neront la collecte […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-473","page","type-page","status-publish","hentry"],"yoast_head":"\nRegistre Global - Angelman<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/angelman.ca\/fr\/registre-global\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Registre Global - Angelman\" \/>\n<meta property=\"og:description\" content=\"Registre Global Partagez votre histoire dans le Registre Global du Syndrome d'Angelman Le Registre Global du Syndrome d'Angelman est le premier Registre du patient en ligne pour le Syndrome d'Angelman; mettant le pouvoir dans les mains de ceux qui prennent soin de quelqu'un avec le Syndrome. 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